Sunday, March 21, 2010
Part Two of mothers Alzheimers
I booked my sons flight with mother and after telling them she had Alzheimer they bent over backwards to get them on the same flight all the way there and back. Mother told me I sounded oike a professional and she couldn't believe I did it with such ease. Jesse flew here from Santa Cruz the 19th and their flight left about 6am so the shuttle was going to pick them up at 4am. Mother got up way to early waking Jesse and telling him she heard the shuttle honk. I heard the comotion and went to look. There was no one so I told her to go back to sleep as it was only 1:30 and not time to get up yet. She was like a little girl. She went to bed and got up at 3am. Jesse went to take a shower and I packed snacks for mother to take and water. The shuttle came at 4am and they were off. I had printed out their itineries and tickets. The first night them were there, Jesse went to bed early and mother was sitting up with her cousin Margory. Margory asked mother to go into this dark bedroom (no lights) and turn a crank on an old crank bed (Jesse said a few days later) mother did it and then rammed her let into a piece of metal. Mother tells it like something shot out and impailed her leg. This is not ehat happened but she is fixated on it. The next day Margories son a doctor took mother and jesse to the ER and they cleaned the wound and gave mther some antibiotics to get her home then they told her to go to the ER here to get it seen again. She came home looking like she had aged 10 years in the 6 days they were gone. Thar was wednesday the 26th. The next morning Mother went to the ER and they gave her a perscription which she filled. So She took it that morning and at night, then she misplaced it without telling me. She went without the antibiotic for 4 days and on Monday I had t rush my little Sedona to the vet because she seemed to be having trouble urinitating, I was worried she might have sistitus. I asked a friend if female cats got it because I thought only makes got it. While we were finishing up at the vets mother complained that her leg was really hurting. She pulled up her pants leg and way beyond the bandage it was red and swolled and hot. I told her she better go to the ER and it eas at that time she told me she didn't have here antibiotics because she was out to lunch with the girls and she left her purse on the table the someone stole the antibiotic out of her purse. Well first of all mother did not go out with anyone on saturday, she never ever leaves her purse anywhere, she misplaced her antibiotics in the house and they turned up weeks later as did the aricept her former doctor perscribed her. When she got up that morning she went shopping at the market and bought friuts and vegies as well as some frozed dinnes and canned goods and crackers. Then instead of driving home she drove herself to the ER and they kept her there and admitted her. The infetion had gone deep tissue Selutitus (sp?) and she was hospitalized for 4 days. The nurses told me she was very confused and would sit out in the hall and ask when she was going to her room 427. She was sitting in front of the rom 427 that she had just come out of. The nurses told me she was very confused. She wanted to come home and got up and stripped the bed. I convinced her that she had to stay in the hospital because of the 9nfection and they needed to get in under control before she could come home. Also her car was parked in the parking lot of the hospital. I did not have a car. Norma and I talked a couple of times on the phone and then she called and said she would take me down to get mothers car and I could visit her. It all worked out and I met the doctor that was seeing her and he said some things infront of mother that were obviously making her upset. But he said she was very confused and the alzheimers was very progressed. he indicated that he didn't know why she wasn't under medication for alzheimers. I told him her doctor retired and didn't address my concerns about it. But when she had the breakdown in July the ER doctor diagnised her. But she wasn't on any meds yet. Little did I know her doctor did perscribe aricept but she didn't take it, but she filled the perscription. The next day I got a call from the hospital saying they were closing that wing and they were releasing mother so I needed to come down and pick her up. Of course they called while I was sleping and I didn't get it until the afternoon when I woke up. I got there and the nrse told me everything mother had done and how confused she was. She gave me a list of doctors for mother's regular gp and the wound care center for her wound and the information for the home care nurse. When the home care nurse from Gentiva came the first thing she said to me with mother standing right there was this is not your mother. The sooner you can get that settles in your brain the easier this will be for you. She had taken csare of hr father in law who was in the same stage as mother and he only lived 8 months more. I asked all the doctors, How can she be this bad off into Alzheimers and be so "ON" when she is in the office or shoping or visiting with her friends? Then 10 minutes she starts babling and making no sense. I am the only one that sees that side of her. She is mean and nasty to me. She starts arguements and yells at me and when I reach a certain level of frustration yess back at her. Then she says I am always yelling at her. This is the ultimate catch 22 damned if I do and damned if I don't. She has tried to hit me a couple more times bringing it to 3 times now. I always step out of her reach which makes her madder. I was told be the nurse that mother was not to drive anymore. I would have to take over her meds and keep her away from them. Making sure she takes them. I am not up in the morning since she gets up about 2 hours after I go to bed. I can't sleep at night. I think it was from all I went through loosing my home of 29 years and my business of 39 years and some of my babies. Then stepping into this situation like stepping out of the pan and into the fire. This is more like living in hell and no way out. Mother is angry all the time I have noticed there are patterns to her behavior. It goes like when she is most like former self and that can last a couple of hours to a day or two the next phase is the totally hostil, combative, angry phase. This is when she has tried to hit me. it can be over something simple but she blows it up into something else. That can last a day or more, sometimes several days. Then she is like little girl lost. She talks like a little grl and laughs like a little girl sort of a giggle. These are the times when she will come and ask me when she is going home. I tell her she is home or Where do yu think you are? She says this looks like my hme but there are differences. One time I told her to go into her bedroom and look in the drawer with her pajamas and if they were folded the way she folds them, she would know that this is her home. She did it but still wasn't convinced this was her home. That phase usually only lasts a day. Then she is back to angry and when she tries to hit me Then back to actine mre like my mother would act. I have also noticed that she is more confident when she is in this phase. But then comes the mean and nasties. The first 7 months I weas here she was in the mean and nasties. Threating me and yelling at me, telling me if I don't like it I can just leave. Telling me she is going to call th cmpany and see how it is I got pout in this position of authority over her. I tell her thee is no company and thee is just the doctors and nurse. They have told me you can't drive, I have to have control of your meds, I can't leave you alone. If I did and something happened I would be in trouble for leaving you alone. She always says, well we'll see about that. She tells me she is going to call the police and see how it is I got this responsibility. I told her it isn't an emergency and they can't help you with that call your doctor.
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